The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
675 Kalmia Pl NW
Issaquah, WA 98027
The Coffin-Lowry Syndrome Foundation (CLSF) is a national, non-profit, self-help organization that functions as a clearinghouse for information on Coffin-Lowry syndrome and as a general forum for exchanging experiences, advice, and information with other families affected by this rare disorder. Coffin-Lowry syndrome is a genetic disorder characterized by dysmorphic facial features, mental retardation, speech delays, and musculoskeletal abnormalities. Founded in 1991, the Coffin-Lowry Syndrome Foundation seeks to become a visible group in the medical, scientific, educational, and professional communities to facilitate referrals of newly diagnosed individuals and to encourage medical and behavioral research aimed at improving the quality of life and methods of social integration for people with Coffin-Lowry syndrome. The organization maintains a mailing list of families affected by Coffin-Lowry syndrome and publishes a parent newsletter.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.