The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
1000 Jorie Blvd.
Oak Brook, IL 60523
The Compassionate Friends, Inc., (TCF) is a national mutual assistance, self-help organization dedicated to assisting in the positive resolution of grief following the death of a child or sibling, supporting the efforts of families or individuals to achieve physical and emotional health, and providing information about parental and sibling grief to families, professionals, and the community. Established in 1969 and consisting of 600 chapters, TCF offers support to family members who have experienced the death of a child, including parents, grandparents, and siblings. The organization has support groups, a pen pal program for children who have lost siblings, and a large resource department that offers books, brochures, audiotapes, videotapes, and fact sheets.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.