The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
1102 Bates St
Houston, TX 77030-2399 USA
The National Congenital CMV Disease Registry, based at Baylor College of Medicine in Houston, Texas, collects information on infants born after 1990 with congenital cytomegalovirus (CMV). The registry is committed to identifying disease patterns over time; describing factors that may increase a mother's risk of delivering an infant with congenital cytomegalovirus infection; and providing the foundation for future intervention programs and collaborative research. All newborns with a confirmed diagnosis of congenital CMV are eligible to be registered. To do so, have the pediatrician obtain and complete our registry form. In addition to these activities, the Congenital CMV Disease Registry functions as a national clearinghouse for information about congenital CMV. It distributes reprints of medical articles on human cytomegalovirus infection, publishes a newsletter entitled "CMV Updates," and maintains a CMV Parent-To-Parent Support Network, and publishes an annual newsletter.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.