The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
We catalyze research for treatments and a cure of the progressive retinal disease, gyrate atrophy. Gyrate atrophy is an inherited disease caused by a mutation of the OAT gene. People with gyrate atrophy typically have very poor night vision and lesions on their retinas. These lesions progress over time leading to tunnel vision and can eventually cause blindness. There is currently no cure for gyrate atrophy. We started Conquering Gyrate Atrophy to weave together a community focused on finding a cure. This community includes patients, families and loved ones affected by the disease. This community also includes researchers working on a wide range of topics relevant to gyrate atrophy. We fund research, support collaboration, and share learning to accelerate research and treatment for gyrate atrophy.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.