Cure OGT

We are parents of a child recently diagnosed with a rare genetic disease, OGT-CDG (inborn errors of metabolism). In response, we are working to build a supportive community of parents, researchers, and clinicians to collaborate on finding a treatment. We’ve launched a dedicated website (ogtf.org) and are in the process of organizing a conference for patients, researchers, and clinicians in November 2024. Additionally, we are working towards establishing a 501(c)(3) nonprofit organization.