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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Cure VCP Disease, Inc.



Address

PO Box 6533
Americus, GA 31719 USA

Email Address

curevcpdisease@gmail.com

Description

Cure VCP Disease, Inc. was formed to drive efforts to cure diseases related to mutations of the Valosin Containing Protein gene. This includes the disease Inclusion Body Myopathy associated with Paget’s disease of bone and Frontotemporal Dementia (IBMPFD). The specific objectives of our organization are:
  •  to provide global education and awareness of VCP diseases to doctors, researchers, investors, patients, caregivers and the general public;
  •  to develop and maintain a global patient registry of VCP disease patients;
  •  to develop and maintain a fundraising vehicle to support awareness and education efforts;
  •  to collaborate with other global organizations and entities which are promoting a cure for diseases which have symptoms similar to VCP diseases;
  •  to sponsor, host and/or participate in events and activities that promote efforts to cure VCP diseases. Facebook: https://www.facebook.com/curevcpdisease/

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