Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Cystinosis Research Foundation


Address

19200 Von Karman Ave
Ste 920
Irvine, CA 92612 USA

Phone

949-223-7610

Email Address

[email protected]

Description

The Cystinosis Research Foundation (CRF) is a non-profit organization whose mission is to support bench, clinical and translational research to find better treatments to improve the quality of life for those with cystinosis and to ultimately find a cure. Maintaining an aggressive research agenda since its start in 2003, the Cystinosis Research Foundation (CRF) has become the largest fund provider of cystinosis research in the world. From the beginning, all CRF operating costs have been (and continue to be) privately underwritten so that 100 percent of the funds donated go to support cystinosis research. Grants for bench and clinical studies are issued bi-annually to the best and brightest researchers in the world to accelerate progress and ensure that cystinosis research is on-going and focused. To date, CRF has funded 190 multi-year studies at leading research institutions in 12 countries. CRF-funded researchers have published more than 80 articles in prestigious, top-rated journals, adding to the understanding of the pathogenesis of cystinosis, kidney disease, myopathy, corneal cystinosis and stem cell therapies.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.