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Cystinosis Research Foundation


19200 Von Karman Ave
Ste 920
Irvine, CA 92612 USA



Email Address

[email protected]


The Cystinosis Research Foundation (CRF) is a non-profit organization whose mission is to support bench, clinical and translational research to find better treatments to improve the quality of life for those with cystinosis and to ultimately find a cure. Maintaining an aggressive research agenda since its start in 2003, the Cystinosis Research Foundation (CRF) has become the largest fund provider of cystinosis research in the world. From the beginning, all CRF operating costs have been (and continue to be) privately underwritten so that 100 percent of the funds donated go to support cystinosis research. Grants for bench and clinical studies are issued bi-annually to the best and brightest researchers in the world to accelerate progress and ensure that cystinosis research is on-going and focused. To date, CRF has funded 190 multi-year studies at leading research institutions in 12 countries. CRF-funded researchers have published more than 80 articles in prestigious, top-rated journals, adding to the understanding of the pathogenesis of cystinosis, kidney disease, myopathy, corneal cystinosis and stem cell therapies.

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