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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Danish Centre for Rare Diseases and Disabilities


Address

Bredgade 25, F, 5th floor
Copenhagen K, DK-1260 Denmark

Phone

4533914020

Fax

4533914019

Description

The Danish Centre for Rare Diseases and Disabilities is a non-profit government organization that is concerned primarily with severe physical or mental disabilities that affect a population of less than one person in 10,000. Most of these disorders are congenital or hereditary in nature. Founded in 1990, the center's objectives are to offer nationwide support to adults and families who have children with rare disabilities or special needs, and to ensure their access to highly qualified information and counseling services; to network affected individuals and family members with other affected families thus promoting mutual support and self-help groups; to network healthcare professionals; and to promote dialogue and research. A wide range of information and counseling services is offered to all who, either as health professionals or as private persons, need information on rare diseases. Target groups are local professionals and authorities involved in the provision and coordination of counseling, treatment, education and support for persons affected by rare diseases.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.