Danon Disease Foundation

The Danon Foundation boldly empowers people living with Danon Disease, providing trusted information, resources and support to help navigate life, from diagnosis to treatment. Our Mission is to enable the best care possible by supporting education, increasing awareness, and building a community of patients, family members, caregivers, physicians, scientists, friends and partners.
Our Focus is to:
Elevate Danon Disease in the medical community in order to advocate for the best possible care
Provide trusted and centralized information and resources
Support the Danon Disease community