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Desmoid Tumor Research Foundation



Address

P.O. Box 273
Suffern, NY 10901

Phone

9142626595

Fax

8453698302

Email Address

marlene@dtrf.org

Description

The Desmoid Tumor Research Foundation (DTRF) is a non-profit organization whose mission is to seek to advance the science related to desmoid tumors. This includes funding research related to the diagnosis and treatment of desmoid tumors; facilitating and enhancing the dialogue among members of the medical and scientific communities about research related to desmoid tumors; providing informational support for desmoid tumor patients and their families and friends, and heightening awareness of desmoid tumor diagnosis and treatment. Desmoid tumors are benign soft tissue tumors. Also called aggressive fibromatoses, they are locally aggressive and arise from connective tissue, the cells involved with the formation of muscle, fibrous and nerve tissue. These tumors look like dense scar tissue and adhere tenaciously to surrounding structures and organs.

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