DESSH Foundation

The DESSH Foundation was established to raise awareness of DeSanto-Shinawi Syndrome (DESSH) among the medical profession and the general public, to advance research and education related to DESSH, and to provide a support community for patients and families challenged by DESSH. The DESSH Foundation supports patients and families challenged by DeSanto-Shinawi Syndrome through awareness and fundraising to advance research in pursuit of a treatment.