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315 W 39th St
New York, NY 10018 USA
The Familial Dysautonomia Foundation is a national, non-profit organization founded in 1951 by parents of children with familial dysautonomia, a rare genetic disorder characterized by dysfunction of the autonomic nervous system (ANS). Symptoms and findings may include absence of pain sensation, defective secretion and discharge of tears, unusual fluctuations of body temperature, unstable blood pressure, skin blotching, impaired coordination, abnormally decreased reflex responses, and/or other abnormalities. The foundation has chapters located throughout the United States, Canada, the United Kingdom, and Israel. It provides informational materials and supports ongoing medical research and the clinical care of children with this disorder by maintaining the Familial Dysautonomia Treatment and Evaluation Center at New York University Medical Center in New York City and the Israeli Familial Dysautonomia Center at Hadassah Hospital in Jerusalem. In addition, the foundation is dedicated to funding medical research.
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