The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Dysautonomia Support Network is a U.S. based, 501 (C) (3) non-profit organization. Our mission is to provide support, resources, education, and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Disorders, Chiari Malformation, and Gastric Motility Disorders. We are an all volunteer organization, run by patients for patients! Our volunteer leaders and admins are trained to help patients through every stage of their journey, from diagnosis to advocacy. We promote a positive but realistic environment and a sense of community in our national and state chapters. DSN International FB group (Closed Group): This is the passport program into the DSN FB groups and once you are a member you will have access to DSN state chapters and Lifestyle clubs. https://m.facebook.com/groups/411890968872587 Facebook: https://www.facebook.com/DysautonomiaSupportNetwork/
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.