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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Dysautonomia Support Network


Email Address

[email protected]

Description

Dysautonomia Support Network is a U.S. based, 501 (C) (3) non-profit organization.  Our mission is to provide support, resources, education, and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Disorders, Chiari Malformation, and Gastric Motility Disorders. We are an all volunteer organization, run by patients for patients!  Our volunteer leaders and admins are trained to help patients through every stage of their journey, from diagnosis to advocacy. We promote a positive but realistic environment and a sense of community in our national and state chapters. DSN International FB group (Closed Group): This is the passport program into the DSN FB groups and once you are a member you will have access to DSN state chapters and Lifestyle clubs.  https://m.facebook.com/groups/411890968872587 Facebook: https://www.facebook.com/DysautonomiaSupportNetwork/        

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