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ECD Global Alliance



Address

P.O. Box 775
DeRidder, LA 70634

Phone

3375156987


Description

The ECD Global Alliance is a voluntary, non-profit organization whose mission is to raise awareness of Erdheim-Chester disease (ECD); provide support to those affected by the disease; advocate for and support research programs; and share educational material regarding ECD. Erdheim-Chester disease is a rare multisystem disorder of adulthood. It is characterized by excessive production and accumulation of histiocytes within multiple tissues and organs. Histiocytes are large phagocytic cells (macrophages) that normally play a role in responding to infection and injury. In those with ECD, sites of involvement may include the long bones, skin, tissues behind the eyeballs, lungs, brain, pituitary gland, and/or additional tissues and organs. Associated symptoms and findings and disease course depend on the specific location and extent of such involvement.

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