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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

FOCUS Families


2453 Emerald Street
San Diego, CA 92109 United States



800 Number


Email Address

[email protected]


The FOCUS Families is a national, non-profit organization dedicated to providing information, education and support to families whose children are affected by rare septo optic dysplasia and/or optic nerve hypoplasia. Headquartered in San Diego, California, the organization distributes current medical literature visual disorder ONH; provides information on community resources; conducts annual national conventions in the United States and in Europe; assists in coordinating local social events; and publishes the quarterly newsletter, "Focal Points." For those families who choose to participate, there is a registry of members for the purpose of diagnosis matching.

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