Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


FOCUS Families


Address

2453 Emerald Street
San Diego, CA 92109 United States

Phone

8582731473

800 Number

8663628750

Description

The FOCUS Families is a national, non-profit organization dedicated to providing information, education and support to families whose children are affected by rare septo optic dysplasia and/or optic nerve hypoplasia. Headquartered in San Diego, California, the organization distributes current medical literature visual disorder ONH; provides information on community resources; conducts annual national conventions in the United States and in Europe; assists in coordinating local social events; and publishes the quarterly newsletter, "Focal Points." For those families who choose to participate, there is a registry of members for the purpose of diagnosis matching.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.