FOCUS Families

About FOCUS Families

The FOCUS Families is a national, non-profit organization dedicated to providing information, education and support to families whose children are affected by rare septo optic dysplasia and/or optic nerve hypoplasia. Headquartered in San Diego, California, the organization distributes current medical literature visual disorder ONH; provides information on community resources; conducts annual national conventions in the United States and in Europe; assists in coordinating local social events; and publishes the quarterly newsletter, “Focal Points.” For those families who choose to participate, there is a registry of members for the purpose of diagnosis matching.