Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


FRAXA Research Foundation


Address

10 Prince Place
Newburyport, MA 1950 USA

Phone

9784621866

Fax

9784639985

Email Address

info@fraxa.org

Description

The FRAXA Research Foundation is a voluntary, non-profit organization dedicated to providing support for individuals affected by Fragile X syndrome, an X-linked disorder characterized by mental retardation, a large jaw, a high forehead, enlarged testes, and/or other abnormalities in affected males and, in some cases, mild mental retardation in females (heterozygotes). The foundation is also committed to aiding the research efforts of concerned medical professionals throughout the United States. Founded in 1994 by parents of children with Fragile X syndrome, the FRAXA Research Foundation is dedicated to educating public officials and the general population about Fragile X and to supporting ongoing medical research. The foundation works toward these goals by awarding research grants to university-based scientists and physicians whose purpose is to find treatments for Fragile X syndrome and by encouraging the publication of articles to increase awareness of Fragile X syndrome. In addition, the FRAXA Research Foundation puts families with affected children in touch with one another and welcomes questions about this disorder from concerned individuals.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.