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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Frontotemporal Dementia Support Group


Address

3 Fairfield Park
Lyme Regis, DT7 3DS United Kingdom

Phone

+44 (0)20 7679 2000

Email Address

jill.walton@ucl.ac.uk

Description

The Frontotemporal Dementia Support Group (FTDSG) formerlly Pick's Disease Support Group is a non-profit organization in the United Kingdom that was established by caregivers of individuals with Pick's disease and other related disorders. Pick's disease is a progressive degenerative disease that affects the frontal and temporal lobes of the brain. Affected individuals experience frontotemporal dementia, which may be characterized by gradual disintegration of personality and emotions, behavioral abnormalities, and speech impairment. The FTDSG meets several times each year, publishes a regular newsletter, and maintains a web site on the Internet. The organization's newsletter contains meeting reports, articles written by professionals who care for individuals with Pick's disease, and articles written by caregivers. The FTDSG web site provides several back issues of the organization's newsletter, offers contact information for caregivers who are interested in networking via telephone or e-mail, and includes links to additional sources of information and support on the Internet.

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