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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Gauchers Association (UK)


Address

Evesham House Business Centre
48/52 Silver Street
Gloucestershire, GL11 4ND United Kingdom

Phone

441453549231

Fax

441453549231

Email Address

ga@gaucher.org.uk

Description

The Gauchers Association is a non-profit support group dedicated to providing information and support to families in the United Kingdom, Ireland, and elsewhere whose lives have been affected by Gaucher's disease. Gaucher's disease is the most common type of lipid storage disease (others include Tay-Sachs, Fabry's, and Neimann-Pick diseases) and is characterized by anemia, fatigue, easy bruising, and a tendency to bleed more easily than normal. Established in 1991 and currently consisting of 150 members, the Gauchers Association provides information to the general public and medical professionals about Gaucher's disease, and actively encourages ongoing medical research.

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