To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.



9725 Third Avenue NE
Suite 602
Seattle, WA 98115





Email Address

[email protected]


The GeneTests-GeneClinics, a web site funded by the National Library of Medicine, is a medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. Funding sources include the National Library of Medicine and the National Human Genome Research Institute at the National Institutes of Health, Health Resources and Services Administration, and the US Department of Energy. The site includes: GeneReviews, an online publication of expert-authored disease reviews; Laboratory Directory, an international directory of genetic testing laboratories; clinic directory, an international directory of genetics and prenatal diagnosis clinics; and educational materials including an illustrated glossary, information about genetic services and teaching tools.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.