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*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Genetic and Rare Conditions Site


Address

4023 Wescoe
University of Kansas Med Center
Kansas City, KS 66160-7318

Phone

9135886022

Fax

9135884060

Email Address

dcollins@kumc.edu

Description

The Genetic and Rare Conditions Site provides information on genetic conditions and birth defects for professionals, educators, and individuals. It links to sites for lay advocacy and support groups, clinics with genetic counselors and geneticists, and sites for children and young adults.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.