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Goldenhar Syndrome Support Network Society


Address

PO Box 751112
Las Vegas, NV 89136-1112 USA

Fax

7023415351

800 Number

8884861209

Email Address

info@ameriface.org

Description

The Goldenhar Syndrome Support Network is a program of Ameriface, a GSSN is a non-profit organization dedicated to providing support and information to families and individuals affected by Goldenhar syndrome and its associated conditions. Goldenhar syndrome, often used synonymously with oculo-auriculo-vertebral (OAV) spectrum, is a rare disorder that is apparent at birth (congenital). It is characterized by a wide spectrum of symptoms and physical features that may vary greatly in range and severity from case to case. However, such abnormalities tend to involve the cheekbones, jaws, mouth, ears, eyes, and/or bones of the spinal column (vertebrae).

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