goldenhar Syndrome Support Network Society

About goldenhar Syndrome Support Network Society

The Goldenhar Syndrome Support Network is a program of Ameriface, a GSSN is a non-profit organization dedicated to providing support and information to families and individuals affected by Goldenhar syndrome and its associated conditions. Goldenhar syndrome, often used synonymously with oculo-auriculo-vertebral (OAV) spectrum, is a rare disorder that is apparent at birth (congenital). It is characterized by a wide spectrum of symptoms and physical features that may vary greatly in range and severity from case to case. However, such abnormalities tend to involve the cheekbones, jaws, mouth, ears, eyes, and/or bones of the spinal column (vertebrae).

Related Rare Diseases: