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Headlines – Craniofacial Support Group


8 Footes Lane
Frampton Cotterell
Bristol, BS36 2JQ United Kingdom



Email Address

[email protected]


The purpose of Headlines, The Craniofacial Support Group is to support, inform, and advise anyone having, or dealing with, craniosynostosis and associated conditions and syndromes, such as Crouzon syndrome, Saethre-Chotzen syndrome, Pfeiffer syndrome, and Apert's syndrome. These are conditions and syndromes in which abnormalities of the shape of the skull affect the appearance of the head and/or face. Based in the United Kingdom, Headlines has members in 16 countries. In addition to patient education and networking, it provides other services that include publication of a newsletter and support of health professionals. The organization was established in 1993.

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