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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Health Resource and Services Administration


8280 Greensboro Drive, Suite 300
McLean, VA 22102





800 Number




Email Address

[email protected]


The Health Resources and Services Administration (HRSA) Information Center provides publications, resources, and referrals on health care services for medically underserved individuals and populations. Trained information specialists answer questions, refer callers to subject-specific information resources, and provide HRSA publications. Spanish-speaking information specialists are available. Hours of operation: 8:30 a.m.-5:00 p.m., Monday-Friday (Eastern Time, except Federal holidays).

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.