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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Huntington’s Disease Society of America – Connecticut Affiliate


Address

505 Eighth Avenue
Suite 902
New York, NY 10018

Phone

212-242-1968

800 Number

800-345-4372

Email Address

smcgann@hdsa-ct.org

Description

The Huntington's Disease Society of America-CT Affiliate (HDSA-CT) is one of 38 chapters and affiliates of the national HDSA, a voluntary, not-for-profit health organization dedicated to improving the lives of people with Huntington's disease and their families. The mission for which the Society was formed and shall operate are: to promote and support research on Huntington's disease to eradicate the disease; to assist people and families affected by Huntington's disease to cope with the problems presented by the disease; to educate the public and health professionals about Huntington's disease. The CT Affiliate collaborates with UCONN Health Center's Huntington's Disease Program by referring any patients/family members to them for counseling and genetic testing and support groups. All services are free of charge for Connecticut residents. Contact information is: Bonnie L. Hennig, MSW, LCSW, Clinical Therapist/Site Coordinator CREST-E, University of Connecticut Health Center, Huntington's Disease Program, 263 Farmington Avenue, Dowling North-Second Floor, Farmington, CT 06030-6204, (860) 679-444.

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