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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Hypermobility Syndrome Association


Address

Sovereign House
22 Shelley Road
Worthing, West Sussex BN11 1TU United Kingdom

Phone

8453454465

Description

The Hypermobility Syndrome Association is a support group for individuals and families affected by hypermobility syndrome, a composite term referring to laxity of the joints. At one end of the spectrum, this would include diseases such as Marfan syndrome, with potentially serious complications. At the other end, it would include conditions such as benign joint hypermobility syndrome, which may result in pain or other problems but do not pose a serious threat to life and health. The association provides information and educational materials to medical practitioners, as well as to patients and families. Members are welcome from all countries.

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