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International Costello Syndrome Support Group


Address

90 Parkfield Road North
New Moston
Manchester, M40 3RQ United Kingdom

Phone

44 161 682 2479

Email Address

c.stone8@ntlworld.com

Description

The International Costello Syndrome Support Group is a voluntary, non-profit organization dedicated to providing support and information to individuals and families affected by Costello Syndrome. Costello Syndrome is a rare disorder characterized by growth delay after birth (postnatal), leading to short stature; excessive, redundant loose skin on the neck, palms of the hands, fingers, and soles of the feet; development of benign (non-cancerous) growths (papillomata) around the mouth (perioral) and nostrils (nares); mild mental retardation; and/or characteristic facial appearance. Established in 1996, the group publishes a newsletter approximately every four months. It serves as a source of information for affected families as well as a forum for information exchange and the sharing of personal stories.

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