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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International Essential Tremor Foundation


P.O. Box 14005
Lenexa, KS 66285-4005 USA





800 Number


Email Address

[email protected]


The International Essential Tremor Foundation (IETF) is a source of information on essential tremor for patients, families, and healthcare professionals worldwide. The IETF was created to provide information, services, and support to individuals and families affected by essential tremor (ET). The organization encourages and promotes research in an effort to determine the cause(s), treatment(s), and ultimately the cure(s) for ET. The IETF is the only worldwide organization dedicated to meeting the needs of those whose daily lives are challenged by ET. The IETF maintains an extensive international referral service composed of knowledgeable movement disorder neurologists who assist patients and families in receiving correct diagnoses and treatment. These referrals are available upon request or online at

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