International FOXP1 Foundation

The International FOXP1 Foundation (IFF) is a registered 501(c)(3) non-profit organization dedicated to empowering families and individuals with FOXP1 syndrome, a rare genetic disorder characterized by delays in early motor and language milestones, mild-to-severe intellectual deficits, speech and language impairment, and behavior abnormalities.

Founded in 2020, the IFF has experienced steady growth in its programs, reach, and impact. The Foundation is led by a committed board of parent volunteers and its first Executive Director, who joined in June 2025 to guide the organization’s transition from an all-volunteer organization to a more sustainable, professional nonprofit.

The IFF works in close partnership with leading research institutions to advance scientific understanding of FOXP1 syndrome and support research progress. The Foundation maintains a growing repository of information on symptoms, characteristics, behavioral patterns, as well as best practices and the therapies that could enhance quality of life. As the scientific community expands their knowledge on FOXP1, so will our repository of information grow.

The IFF fosters a global community through regular virtual events and has hosted several in-person family gatherings, most recently in June 2025 in the Netherlands. Through fundraising, awareness efforts, and collaboration, the IFF is dedicated to supporting those impacted by FOXP1 syndrome and accelerating progress toward better understanding and potential treatments.