The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
44 Baguley Street
Manchester, M43 7BB United Kingdom
The International Palindromic Rheumatism Society (IPRS) is a non-profit, voluntary organization whose mission is to help inform, give advice to, and offer a place of support to people affected by palindromic rheumatism (PR). Their goal is to have every physician aware of PR and give every sufferer of PR access to an online support and advice group. PR, also known as Hench-Rosenberg syndrome or Hench’s syndrome, is a form of an autoimmune disorder that is a rare type of inflammatory arthritis. PR is characterized by sudden and recurrent attacks of painful swelling of the joints and surrounding tissues. Attacks may last for several days or just a few hours. Between attacks, pain and swelling completely disappear.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.