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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


International Waldenstrom’s Macroglobulinemia Foundation



Address

6144 Clark Center Ave.
Sarasota, FL 34238 USA

Phone

941-927-4963

Fax

941-927-4467

Email Address

[email protected]

Description

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is a patient-founded and patient-led, nonprofit organization that is dedicated to a simple but compelling vision: Support everyone affected by Waldenstrom's macroglobulinemia (WM) while advancing the search for a cure. To accomplish this vision, the IWMF offers WM patients, caregivers, family members, and friends six invaluable services:
  • Information from our website and our publications written in a patient-friendly way to promote understanding of our rare disease
  • Education at our annual Educational Forum to help patients and caregivers learn about our disease from WM researchers and clinicians
  • On-going updates about WM and the IWMF sent through our quarterly IWMF Torch magazine and our NEWS releases
  • Peer support from others who’ve been where you are
  • Information for medical professionals who may have limited experience with our rare disease
  • Research directed to better treatments while we search for a cure
Since WM is a rare disease, the IWMF relies upon individuals for financial support and upon volunteers to do much of its work. Anyone can become a member of the IWMF – to learn how, Join Us. With the IWMF you are never alone.

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