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International Waldenstrom’s Macroglobulinemia Foundation


6144 Clark Center Ave.
Sarasota, FL 34238 USA





Email Address


The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is a non-profit support and information organization for individuals with Waldenstrom's macroglobulinemia (WM), a rare non-Hodgkin's lymphoma frequently characterized by one or more of the following symptoms: abnormal enlargement of the liver and spleen (hepatosplenomegaly) or lymph nodes, weakness, anemia, fatigue, neuropathy, and bleeding. Established in 1994, IWMF publishes a quarterly magazine that provides information about symptoms and treatments, stories of interest about patients and caregivers, articles about living with the disease, and information about IWMF activities. Comprised of more than 10,000 members throughout the world, the organization offers a telephone and email service and provides a network of support groups around the world to offer support and understanding to individuals and families affected by WM. The organization also sponsors an Internet discussion group and an annual educational forum for patients and supports a robust research program to fund projects aimed to better understand the disease.

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