Joshua Frase Foundation

P.O. Box 2041
Ponte Vedra Beach, FL, USA


2024 Member

About Joshua Frase Foundation

The Joshua Frase Foundation (JFF) is a 501C3 non-profit organization that was founded in 1996; a year after Paul and Alison’s son was born with an ultra rare and fatal neuromuscular disorder. Without hesitation, the foundation began funding cutting-edge research in the area of regenerative medicine, gene therapy and genetics since 1997. JFF’s mission is twofold: To continue to be a catalyst in finding a cure or treatment for centronuclear and myotubular myopathies while supporting families whose lives are affected by these disorders.