KARES Foundation

The KARES Foundation is a family-led organization dedicated to improving the lives of individuals affected by KDM5C genetic variants through advocacy, research, education, and support. We work to advance understanding of KDM5C-related disorders and promote collaboration among families, researchers, and medical professionals.

We support research that leads to meaningful advancements in care and therapeutic development. By funding scientific studies and fostering interdisciplinary collaboration, we aim to accelerate progress in KDM5C research and ensure that discoveries benefit the community.

We empower families with resources and education, equipping them with the knowledge to navigate life with a KDM5C-related disorder. Our programs provide support and connection, creating a strong network where families can share experiences and expertise.

We know that the family voice is critical in shaping research priorities and ensuring that scientific advancements translate into real-world impact. The KARES Foundation bridges the gap between researchers and the KDM5C community, facilitating data-sharing and helping researchers access the information and samples needed to advance their work.

At our core, we believe in hope, innovation, community, and integrity. We are committed to fostering a future where individuals with KDM5C genetic variants receive the care and support they need to thrive.

At our core, we believe in hope, innovation, community, and integrity. We are committed to fostering a future where individuals with KDM5C genetic variants receive the care and support they need to thrive.