The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
The KBG Foundation is dedicated to providing support, assisting in research programs and advocating to raise awareness about the syndrome. Facebook: facebook.com/KGBFdn
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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.
