KBG Syndrome Association
About KBG Syndrome Association
To further the cause of KBG Syndrome by spreading awareness, connecting researchers & supporting families to improve outcomes for individuals diagnosed.
One in 10 Americans lives with rare disease, many of whom fight a daily battle to access the care and support they need. Your gift to the National Organization for Rare Disorders (NORD®) funds life-changing programs and helps us advance policies and research to ensure that everyone gets the care they need AND deserve.