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Kharkov Renaissance Foundation For Children With Spinal Muscular Atrophy


Address

Gogol Street, 7
Kharkov, 61057 Ukraine

Phone

380577313121

Fax

380503640673

Email Address

info@csma.org.ua

Description

The Kharkov Renaissance Foundation for Children with Spinal Muscular Atrophy (CSMA) is a non-profit, rare disorder organization located in the Ukraine. The primary goal of CSMA is to protect the rights of patients affected by spinal muscular atrophy (SMA). This is a slowly progressive, inherited muscle-weakness and muscle-wasting disease. CSMA is one of several organizations working collaboratively through the International Alliance for Spinal Muscular Atrophy. It encourages the exchange of information related to SMA around the globe. CSMA works to educate patients and their families through support groups and genetic counseling.

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