Kharkov Renaissance Foundation For Children With Spinal Muscular Atrophy

The Kharkov Renaissance Foundation for Children with Spinal Muscular Atrophy (CSMA) is a non-profit, rare disorder organization located in the Ukraine. The primary goal of CSMA is to protect the rights of patients affected by spinal muscular atrophy (SMA). This is a slowly progressive, inherited muscle-weakness and muscle-wasting disease. CSMA is one of several organizations working collaboratively through the International Alliance for Spinal Muscular Atrophy. It encourages the exchange of information related to SMA around the globe. CSMA works to educate patients and their families through support groups and genetic counseling.