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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Klippel-Trenaunay Support Group


Address

1471 Greystone Lane
Milford, OH 45150

Phone

5137227724

Fax

9529252596

Email Address

support@k-t.org

Website

http://k-t.org/

Description

The Klippel-Trenaunay Support Group is a voluntary, self-help organization dedicated to providing support for individuals affected with Klippel-Trenaunay syndrome and their families. Klippel-Trenaunay syndrome is a rare congenital disorder characterized by the presence of a port-wine stain on the skin, excessive growth of the soft tissues and/or bones, venous malformations, and lymphatic abnormalities. Established in 1986, the organization conducts biannual meetings for affected individuals and their families to enable them to exchange information, experiences, and support; makes medical advisors available during these meetings; and provides phone support to members. In addition, the group maintains a confidential group roster so that members may correspond with one another and raises awareness of the disease among the medical community and the general public. The Klippel-Trenaunay Support Group provides a variety of educational materials including a periodic newsletter, brochures, and a list of current medical articles on K-T syndrome.

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