KMT2E Foundation O’Donnell-Luria-Rodan Syndrome

The KMT2E Foundation O’Donnell-Luria-Rodan Syndrome is established to accelerate research and work towards treatment options for O’Donnell-Luria-Rodan Syndrome. We have an online community for patient advocates in Facebook. We also partner with the KMT2C Foundation for family and research conferences. Actively participate in KMT2E Foundation research by completing medical surveys and joining our biorepository hosted through Simons Searchlight! Feel free to also contact us directly to find out about research opportunities and our natural history study for KMT2E.