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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Leukodystrophy Australia


Address

Nerve Centre Building
54 Railway Road
BLACKBURN, VIC 3130 Australia

Phone

+61 3 9845 2831

800 Number

1800 141 400

Email Address

info@leuko.org.au

Description

The Australian Leukodystrophy Support Group, Inc (ALDS) provides professional counseling to leukodystrophy sufferers and their families; increases public awareness of leukodystrophy; acts as a source of information for healthcare providers; raises funds for research; and provides educational materials for patients and families. Leukodystrophy is the name given to a group of very rare, progressive, metabolic, genetic diseases that affect the brain, spinal cord and often the peripheral nerves. The name comes from the Greek "leuko" meaning "white" and "dystrophy" meaning "imperfect growth or development". ALDS provides assistance and information to those affected by the leukodystrophies. ALDS also supports research into the disorder. ALDS offers a newsletter, and brochures on the leukodystrophies.

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