About LGMD Awareness Foundation
An advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as limb-girdle muscular dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community. By increasing awareness of and advocating for individuals living with LGMD, we aim to assist in advancing the genetic diagnosis, care, and treatment. We also coordinate LGMD Awareness Day which is globally celebrated on September 30 each year.