About Li-Fraumeni Syndrome International Registry
The Li-Fraumeni Syndrome International Registry (DfCI) is a non-profit health organization dedicated to compiling data concerning families with Li-Fraumeni syndrome and providing them with information regarding surveillance and intervention options. Li-Fraumeni syndrome is a familial disorder consisting of the appearance of early breast cancer. Established in 1969, the registry provides referrals to genetic counseling and other services and works to educate affected families and healthcare professionals. It provides a variety of educational and support materials, including a regular newsletter, videotapes concerning genetic testing, brochures, and fliers.