585 Troy Schenectady Rd
Latham, NY, USA


2024 Member

About Liv4TheCure

Liv4TheCure’s mission is to help advanced science and technology for rare chromosomal deletion syndromes. The founders daughter has Wolf Hirschhorn Syndrome, a deletion on the 4th chromosome which makes this cause near and dear to her heart. Their goal is to bring awareness to rare diseases, specifically Wolf Hirschhorn Syndrome which is a genetic deletion on the 4th chromosome that affects children in highly varied ways. All funds will go to research, specifically gene therapy and replacement for the missing areas of the 4th chromosome that have been deleted. Liv4TheCure wants to fund the creation of a new platform technology such as CRISPR that will not only help children with WHS but any child with a genetic deletion.

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