Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


M-CM Network



Address

PO Box 97
Chatham, NY 12037 USA

Email Address

hello@m-cm.net

Description

The M-CM Network is a voluntary organization whose mission is to improve the lives of individuals with macrocephaly-capillary malformation (M-CM). Their primary goal is to establish and maintain a registry for M-CM in order to improve diagnosis and better understand the natural history of the syndrome. M-CM Network also publishes detailed medical information on their website. M-CM is a rare, complex disorder of the skin and other organs that is present at birth (congenital). Affected individuals have a disproportionately large head and pink-to-red lacy patches (vascular malformations) on the skin of the trunk, limbs and middle portion of the face.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.