To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

MCT8-AHDS Foundation


13324 Highway 82
Tahlequah, OK 74464 USA



Email Address

[email protected]


The MCT8-AHDS Foundation aims to raise interest among the research community in the hope of finding a cure for this ultra rare genetic syndrome, as well as offer support to patients and their families. Last but not least, it aims to raise awareness for MCT8 Deficiency also known as Allan-Herndon-Dudley Syndrome and act as a point of reference for affected families searching for information regarding the syndrome or simply looking to connect with other affected families. Facebook: Twitter: @MCT8.AHDSFoundation

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.