Melanin Children Matter Inc

Melanin Children Matter Inc. (MCM) advocates for children with a particular focus on children of color affected by rare diseases, focusing on bridging racial disparities in health care and advancing research. Our mission is to provide resources, raise awareness, and support families through initiatives such as newborn screening advocacy, rare disease biobank collaborations, expanding rare disease registries and funding research surrounding SPTLC2/Pediatric ALS. MCM is committed to empowering families, educating communities, and driving equitable access to care.