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MHE and Me- A Support Group for Kids with Multiple Hereditary Exostoses


Address

PO Box 651
Pine Island, NY 10969-0651 USA

Phone

8452586058

Fax

8452586058

Email Address

mheandme@yahoo.com

Description

The MHE and Me is a support group for children with multiple hereditary exostoses (MHE). Besides providing peers and creating a supportive community for children with MHE, the organization provides families with educational materials and resources to best help the children affected by this rare genetic disorder. MHE is characterized by multiple bony growths or tumors (exostoses) that are covered by cartilage. These growths vary in size, location and number, depending on the individual. MHE and Me is a member of the MHE Coalition.

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