The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
PO Box 6086
Lancaster, PA 17607-6086
The purpose of Mid-Atlantic Connection for PKU and Allied Disorders (MACPAD) is to increase awareness of phenyketonuria (PKU) and related disorders, and to underscore the importance of diagnosing these disorders at birth. PKU is a metabolic disorder characterized by an inability of the body to utilize the essential amino acid, phenylalanine. If not detected and treated early, it can lead to severe problems including mental retardation and seizures. With appropriate blood testing, it can be detected during the first days of life. MACPAD provides a network of support for families of newly diagnosed children and for individuals of all ages. It encourages proper treatment by providing nutritional guidance and information.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.