Myhre Syndrome Foundation

2026 Member
About Myhre Syndrome Foundation
Myhre Syndrome Foundation is a patient advocacy organization dedicated to providing hope and improving the lives of those impacted by Myhre syndrome. The Myhre Syndrome Foundation accelerates the development of transformative therapies and cures for Myhre syndrome by building integrated preclinical and clinical research platforms, fostering international scientific collaboration, and ensuring that the needs of patients and families drive every stage of therapeutic development.


