To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Myotonic Dystrophy Support Group


19-21 Main Road
Nottingham, NG4 3HQ United Kingdom



800 Number


Email Address

[email protected]


The Myotonic Dystrophy Support Group is a self-help group of volunteers who work throughout the United Kingdom to promote awareness of myotonic dystrophy, a form of muscular dystrophy that affects adults, and provide information and support to patients, family members, and healthcare professionals. The Myotonic Dystrophy Support Group offers friendship to reduce the sense of isolation patients can feel after they have received a diagnosis. The group offers opportunities for affected individuals to share their concerns or needs with others who understand their feelings.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.