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National ALS Registry


4770 Buford Hwy NE MS F-57
Atlanta, GA 30341



800 Number


Email Address

[email protected]


The National Amyotrophic Lateral Sclerosis (ALS) Registry, created by ATSDR, is the only congressionally mandated population based registry for ALS in the United States. It attempts to identify every person with ALS in the U.S. Other ALS registries do not actively try to include everyone and are not congressionally mandated. The main goals of the Registry are to determine the incidence and prevalence, characterize the demographics, and examine the potential risk factors for persons with ALS in the United States.

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