To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Creutzfeldt-Jakob Disease Research & Surveillance Unit


Western General Hospital
Crewe Road
Edinburgh, EH4 2XU United Kingdom





Email Address

[email protected]


The National Creutzfeldt-Jakob Disease Research & Surveillance Unit is a patient advocacy, research organization located in the United Kingdom. Founded in 1990, the unit monitors Creutzfeldt-Jakob disease (CJD) in the UK in order to identify any changes in the pattern of disease that might be attributable to the emergence of bovine spongiform encephalopathy, a variant of CJD. CJD is an extremely rare degenerative brain disorder characterized by the sudden development of rapidly progressive neurological and neuromuscular symptoms. The unit also identifies all cases of any form of CJD and studies the clinical features and diagnosis of these illnesses.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.